ALZHEIMER’S ASSOCIATION
The Alzheimer’s Association provides detailed information about research, caregiver resources and chapter information that services your area. They have a 24/7 care line for individuals to call who need immediate assistance. Registration is also available for e-newsletters and fund raising information.
24/7 Helpline: 1.800.272.3900
ALZHEIMER’S DISEASE RESOURCES
Check out informative publications from Alzheimer’s Disease Research, newsletters with research updates, organizations that can provide assistance in many areas, from financial aid to senior housing, medical illustrations and videos, a list of helpful books, and memory games and exercises.
ALZHEIMER’S FOUNDATION OF AMERICA
The mission of the Alzheimer’s Foundation of America (AFA) is “to provide optimal care and services to individuals confronting dementia, and to their caregivers and families – through member organizations dedicated to improving quality of life.
AMERICAN PARKINSON’S DISEASE ASSOCIATION
As the country’s largest grassroots Parkinson’s disease organization, the American Parkinson Disease Association (APDA) improves the lives people with Parkinson’s disease and their families from coast to coast with patient/caregiver support; education and positive lifestyle programs; awareness, social and fund raisingevents; and scientific research funding at all levels.
LEWY BODY DEMENTIA ASSOCIATION
The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association’s purposes are charitable, educational, and scientific.
LBD Caregiver Link – 800.539.9767
THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION (FTD)
Frontotemporal degeneration (FTD) is a disease process that results in progressive damage to the temporal and/or frontal lobes of the brain. It causes a group of brain disorders that share many clinical features. FTD is also commonly referred to as frontotemporal dementia, frontotemporal lobar degeneration (FTLD), or Picks disease.
CARE CROSSROADS
Care Crossroads is an innovative, interactive “community of care” Web site that helps family caregivers meet other caregivers, learn about the brain disorder and connect “live” with experts. Among the site’s highly-versatile and unique features, AFA’s social workers are standing by 9 a.m. to 5 p.m. (Eastern) Monday to Friday to respond to questions and concerns on caregivers’ own communication terms: online via Skype and live chat, as well as e-mail and phone calls to the organization’s toll-free hot line at 866-232-8484. Caregivers can meet other caregivers via a discussion board, “I Care” video stories and creative contributions.
GENERAL:
National Institute of Health – Free Publications
John’s Hopkins News Alerts
MAGAZINES/JOURNALS:
Take Care: National Family Caregivers Association (NFCA)
Take Care is a quarterly newsletter of the National Family Care giver’s Association with evidence based research and practical caregiver advice. A “question and answer” column and resource information is included. Sign up or read past issues
Today’s Caregiver Magazine / Caregiver Media Group
Today’s Caregiver is a national magazine for caregivers that contains feature articles, interviews, book reviews, letters, poetry, advertisements and advertiser index. Specific articles are search able from the search function.
Download issues in PDF or subscribe