suggested readings

Creating Moments of

Joy for the Person with

Alzheimer's or

Dementia: A Journal for

Caregivers

Jolene Brackey

Short Stories creating a positive perspective

on coping.

buy on amazon

barnes & noble

The 36-Hour Day: A

Family Guide to Caring

for People Who Have

Alzheimer Disease,

Related Dementias, and

Memory Loss

Nancy L. Mace,

Peter V. Rabins

A family guide to caring for people who have Alzheimer’s Disease, related dementias and

memory loss.

buy on amazon

barnes & noble

I'm Still Here: A New

Philosophy of

Alzheimer's Care

John Zeisel

endorsed by Daniel Goleman, author of

‘Emotional Intelligence’.  A new philosophy

of Alzheimer’s care…

 

1. Effectively manage the 4 A’s:  agitation,

apathy, anxiety and aggression

2. The 5 keys for meaningful communication

3. The 7 rules of relationship building

4. Reconnect through art, music, film, and

poetry

buy on amazon

barnes & noble

Susie & Herman:

A Story of Love

and Caregiving

L.B. Smith

The memoirs of a caregiver for family members with dementia

buy on amazon

barnes & noble

Still Alice

Lisa Genova

Still Alice-is a compelling debut novel about

a 50-year-old woman's sudden descent into

early onset Alzheimer's disease.

buy on amazon

barnes & noble

Chicken Soup for the

Soul: Living with

Alzheimer's & Other

Dementias: 101 Stories

of Caregiving, Coping,

and Compassion

Amy Newmark

Angela Timashenka Geiger

Caring for a loved one with Alzheimer’s or

another form of dementia? You are not

alone. With 101 encouraging and inspiring

stories by others like you, this book is a

source of support and encouragement

throughout your caregiving journey.

buy on amazon

barnes & noble

Looking for Lionel:

How I Lost and Found

My Mother Through

Dementia

Sharon Snir

Looking For Lionel: Is a warm, insightful

memoir about how dementia entered

Sharon Snir's family and left them struggling

with fear and sorrow. As Sharon shares her

inspirational story, she invites you into her

world of laughter and tears. Written for

family and friends of those with the disease,

it helps readers regain their courage and

find the joys of relating in the here and now.

buy on amazon

barnes & noble

Remembering the Music,

Forgetting the Words:

Travels with Mom in the

Land of Dementia

Kate Whouley

Recounts the author’s relationship with her

mother, both as a child admiring her mother,

an innovative educator, and as an adult

coping with caring for her Alzheimer’s-

affected mother.

buy on amazon

barnes & noble

The Validation

Breakthrough:

Simple Techniques for

Communicating with

People with Alzheimer's

and Other Dementias

Naomi Feil

Vicki de Klerk-Rubin

Super techniques for communicating with

people with “Alzheimer’s-Type Dementia.”

buy on amazon

barnes & noble

Jan's Story: Love Lost

to the Long Goodbye of

Alzheimer's

Barry Petersen

Katie Couric

A full, rich story of two people--and

thousands like them--for whom "forever"

suddenly has an expiration date.

buy book

Strengthen Your Mind:

Activities for People with

Early Memory Loss

Volume 1

Kristin Einberger

Janelle Sellick

Strengthen Your Mind contains dozens of activities and worksheets for persons with early memory loss across a broad range of interests to stimulate the mind, memories, and the senses.

buy on amazon

barnes & noble

Strengthen Your Mind:

Activities for People with

Early Memory Loss

Volume 2

Kristin Einberger

Janelle Sellick

Strengthen Your Mind contains dozens of activities and worksheets for persons with early memory loss across a broad range of interests to stimulate the mind, memories, and the senses.

buy on amazon

barnes & noble

The Memory Box

Mary Bahr

David Cunningham

When Gramps realizes he has Alzheimer's

disease, he starts a memory box with his

grandson, Zach, to keep memories of all

the times they have shared.

buy book

Striped Shirts and

Flowered Pants:

A Story about

Alzheimer's Disease for

Young Children

Barbara Schnurbush

Cary Pillo

With gentle reassurances and support from

her family, Libby learns how the disease

will ultimately affect her grandmother. She

discovers ways to handle her feelings and

worries, and she realizes that it is okay

if she and her Nana wear striped shirts

with flowered pants.

buy on amazon

barnes & noble

Still My Grandma

Veronique Van Den Abeele

Claude K. Dubois

With charming, sensitive illustrations, this

story gently introduces young readers to

the realities of Alzheimer’s disease, and

reminds them that love is more powerful

than any illness can be.

buy on amazon

barnes & noble

Green Kitty

Alexandra Faer Bryan

The grandmother has recently been placed

into assisted living due to her dementia and

their bond grows stronger through the visits

despite the illness. Helpful information about

Alzheimer's disease is deftly woven into the

work.

buy on amazon

barnes & noble

What's Happening to Grandpa?

Maria Shriver

Sandra Speidel

Shriver has written a full-color, hardcover

children's book about a grandparent with

Alzheimer's disease. Shriver walks a girl

through acceptance and a beginning

understanding of her Grandpa's condition.

This well-meaning book is clearly and

lovingly written.

buy on amazon

barnes & noble

Today's Caregiver Magazine

Today's Caregiver is a national magazine

for caregivers that contains feature articles,

interviews, book reviews, letters, poetry,

advertisements and advertiser index.

Specific articles are searchable from the

search function.

subscribe

Take Care Newsletter: National Family Caregivers Association (NFCA)

Take Care is a quarterly newsletter of the

National Family Caregiver's Association

with evidence based research and practical

caregiver advice. A "question and answer"

column and resource information is

included.

subscribe

MEMORY SUPPORT LINKS & READINGS

The Alzheimer’s Association provides detailed information about research, caregiver

resources and chapter information that services your area.  They have a 24/7 care line

for individuals to call who need immediate assistance.  Registration is also available

for e-newsletters and fundraising information.

 

24/7 Helpline: 1.800.272.3900

Check out informative publications from Alzheimer's Disease Research, newsletters

with research updates, organizations that can provide assistance in many areas, from

financial aid to senior housing, medical illustrations and videos, a list of helpful books,

and memory games and exercises.

The mission of the Alzheimer's Foundation of America (AFA) is "to provide optimal care

and services to individuals confronting dementia, and to their caregivers and families-

through member organizations dedicated to improving quality of life.

As the country’s largest grassroots Parkinson’s disease organization, the American

Parkinson Disease Association (APDA) improves the lives people with Parkinson’s

disease and their families from coast to coast with patient/caregiver support; education

and positive lifestyle programs; awareness, social and fundraising events; and

scientific research funding at all levels.

The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization

dedicated to raising awareness of the Lewy body dementias (LBD), supporting people

with LBD, their families and caregivers and promoting scientific advances.  The

Association's purposes are charitable, educational, and scientific.

 

LBD Caregiver Link – 800.539.9767

Frontotemporal degeneration (FTD) is a disease process that results in progressive

damage to the temporal and/or frontal lobes of the brain.  It causes a group of brain

disorders that share many clinical features.  FTD is also commonly referred to as

frontotemporal dementia, frontotemporal lobar degeneration (FTLD), or Picks disease.

Care Crossroads is an innovative, interactive “community of care” Web site that helps

family caregivers meet other caregivers, learn about the brain disorder and connect

“live” with experts.  Among the site’s highly-versatile and unique features, AFA’s social

workers are standing by 9 a.m. to 5 p.m.  (Eastern) Monday to Friday to respond to

questions and concerns on caregivers’ own communication terms: online via Skype

and live chat, as well as e-mail and phone calls to the organization’s toll-free hot line

at 866-232-8484.  Caregivers can meet other caregivers via a discussion board, “I Care”

video stories and creative contributions.

General:

Magazines/Journals:

Take Care: National Family Caregivers Association (NFCA)

Take Care is a quarterly newsletter of the National Family Caregiver's Association

with evidence based research and practical caregiver advice.  A "question and answer"

column and resource information is included.  Sign up or read past issues

 

Today's Caregiver Magazine / Caregiver Media Group

Today's Caregiver is a national magazine for caregivers that contains feature articles,

interviews, book reviews, letters, poetry, advertisements and advertiser index.  Specific

articles are searchable from the search function.  Download issues in PDF or subscribe

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